Today is rare Disease Day. Sadly I have a loved one with a rare disease called Scleroderma. Less then a year ago I had no idea what that word meant and now I know all too well. It rocked our worlds when we found out, but it has absolutely made me treasure every moment with my sister. I love her with all my heart!
So what is Scleroderma?
Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.
Only about 300,000 people in the United State have Scleroderma so much is not known about this disease. It took my sister almost 2 years of lots of tests and lots of wrong possible diagnosis before they were able to finally diagnosis her with Scleroderma. I wish more was known about this disease so she would have been able to tell earlier what disease she had and maybe she would have been able to stop a lot of the side effects of Schleroderma that she is now having to live with. For more information about Scleroderma please follow this link..http://www.scleroderma.org/medical/overview.shtm
In honor of Rare Disease Day and my sister, I am doing a giveaway! The winner will have a $25 dollar donation to the Scleroderma foundation in their name made and a set of note cards from http://teresanadeau.com/notecards.htm
To enter this giveaway just leave a comment for each one of these that you do.
1. Like my page on Facebook https://www.facebook.com/pages/Never-a-Dull-Day-in-Poland/345205038846807
2. Like the Scleroderma page on Facebook https://www.facebook.com/SclerodermaUS?sk=wall
3. Follow me a Twitter @neveradulldaypo
4. Follow me a Pinterest http://pinterest.com/kkagele/
5. Subscribe to my blog by email
6. If you are a fellow blogger repost this giveaway on your blog
Winner comment number will be selected by random.org. The giveaway will run through March 6th.
Good luck and thanks for helping spread the world about this disease!